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The text you provided appears to be a partial BBC news article about individuals affected by progressive supranuclear palsy (PSP), a rare neurological condition. Here is a summary based on the content you shared:
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### Living with Progressive Supranuclear Palsy (PSP)
**Gillian Manitara**, 62, from Roydon, Essex, was diagnosed with PSP in January 2024. This rare neurological disease causes severe problems with balance, movement, speech, and vision, and currently affects about 5,000 people in the UK. Before her diagnosis, Gillian’s symptoms were misattributed to menopause or mistaken for dementia.
PSP has left Gillian unable to communicate and rarely opening her eyes, requiring round-the-clock care. Her husband John Manitara describes the experience as “sink or swim but at times you feel like you’re drowning.” He also highlights the challenges families face due to the disease’s rarity and the lack of widespread awareness, which often leads to misdiagnosis and isolation.
Her daughter, Anna Manitara, 26, reminisces about her mother’s lively and confident personality before PSP, describing the emotional toll of watching her condition progress.
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**Clive Hughes**, 77, was diagnosed with PSP in 2022 after his symptoms were initially mistaken for Parkinson’s disease. After retiring to Norfolk and volunteering at a local heritage railway, Clive and his wife Barbara moved back to Bedford to be closer to their daughters due to his worsening health. Clive currently uses a wheelchair and needs help with personal care but can still communicate.
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**Progressive Supranuclear Palsy (PSP):**
– Rare neurological condition
– Causes problems with balance, movement, vision, and speech
– Often misdiagnosed as dementia or Parkinson’s disease
– About 5,000 people affected in the UK
– No known cure; patients require increasing levels of care
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